
(cz) Inevitably, whenever the words “lifestyle” and “designer babies” are used in a report on genetic screening or embryo testing, free rein is given to speculation on the more repulsive fantasies of Aldous Huxley’s hatcheries and Nazi eugenics. The ethics of human reproduction and scientific intervention in this delicate area are a moral minefield, provoking strong emotions and a cacophony of opinions. It is not surprising, therefore, that the decision by the Government’s fertility watchdog to allow a couple to test their embryos for a gene that causes high cholesterol levels is as controversial as it is misunderstood. It appears, at first glance, to open the way to designing children who will never grow fat or to speeding the acceptance of bioengineering to produce superbabies. It is no such thing.
The procedure that has been allowed by the Human Fertilisation and Embryology Authority is designed to detect a rare version of a disease called familial hypercholesterolaemia (FH), which often kills children before puberty. The condition occurs in two forms � a relatively mild one, caused by a single mutated copy of a gene, that nevertheless raises cholesterol levels to dangerous levels, causing heart disease, hardened arteries and strokes; and a far more deadly version, when the sufferer inherits two defective copies that cause high levels of cholesterol from the age of 5, angina and likely early death.
The principle of screening embryos to avoid such suffering has already been accepted for such conditions as Huntington’s disease and cystic fibrosis. Other diseases, caused by genetic defects, have recently been added to the list. This pre-implantation genetic diagnosis, using embryos obtained by IVF, screened and then re-introduced to the womb, is costly, invasive and must be regulated by clear guidelines. more…
From: »The Times« (Editorial)